im pretty sure im autistic, or at least neurodivergent in some way. i think getting tested would give me some peace of mind and validation, but it’s not extreme to where i would need extra help. so i dont really need to be diagnosed if itll just make my life harder. i heard that if diagnosed, you have to take your driving test every year which sounds like such a hassle. are there any other downsides of a diagnosis i should know about? specifically for the us / california. getting a diagnosis would feel validating but maybe its not worth pursuing for me.
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I just got assessed and am going through a divorce with a kid involved, AMA. Jk, uhhh I’m afraid my soon ex-wife will use it against me to get custody at some point.
Literally also going through a divorce with a kid and just got diagnosed. Pretty sure my wife is committed to 50:50 custody though. Still: solidarity.
I don’t know about where you are, but here in australia, you don’t need to take your driving test every year.
As for downsides, a dx precludes you from serving in the military, if that was what you were wanting to do.
A dx helped me a lot. I got answers for why i am the way i am. It also allowed me some room to move, in terms of allowing myself accomodations that other people don’t need. Before i was dx’d i was really hard on myself. But now I’ve accepted that I am different and as such, i struggle with things that other people do not.
It should be noted i was diagnosed when i was 32, so quite late.
I wouldn’t even know where to get a diagnosis as an adult. All the resources in my area seem offer evaluations to children only.
Immigrating to other countries can be much more difficult. Lots of countries will put you under a lot more scrutiny if you have any kind of official diagnosis, because it makes you seem less desirable when compared to another equally qualified applicant who isn’t diagnosed.
How do the other countries find out about the diagnosis? Are you expected to self-disclose?
To my knowledge there really aren’t any downsides to a diagnosis, as a matter of fact you may even have new legal protections under the Americans with Disabilities Act, or ADA: https://autismsociety.org/wp-content/uploads/2021/11/ADA-Fact-Sheet-1-1.pdf
You also have a right to not disclose your diagnosis per HIPAA, so long as you wouldn’t need an accomodation.
It’s expensive.
I’ve also seen a few people start to mold their personalities after a diagnosis. They’ll start exhibiting stereotypical behaviors that they didn’t exhibit before the diagnosis. It might be that they stopped masking, but it’s something to be aware of.
I’ve seen this referred to as “skill regression” and can definitely be part of the process of unmasking. It’s like your whole life you’ve been told that you shouldn’t be bothered by the things that bother you and shouldn’t struggle with the things you struggle with. This makes you learn to not trust your own experience or express your needs. You start to assume that what you’re experiencing is what everyone experiences and you just shove all of your discomfort and meltdowns and shutdowns and exhaustion down as best you can, sometimes to the point where you stop being able to notice things like discomfort in your body. When you finally realize what’s going on and start exploring your own experience, it can be overwhelming. You notice all of the small things that affect you and drain you and that are hard for you. It’s really hard to navigate this process, especially if you don’t have access to a therapist to work through these things with. I think this is much, much more common than people just artificially making up autistic traits they have once they get diagnosed or otherwise realize they have ASD.
Yeah I figure there’s more going on here so I didn’t speculate as to the cause.
There are no real downsides to an official diagnosis. Actually, there are more upsides like getting job protections and even assistance through vocational rehabilitation and other community organizations.
